About

The National Neuromuscular registry started in collaboration with TREAT-NMD Network treat-nmd.eu  in 2013 by Dr. Rasha El Sherif 

http://www.treat-nmd.eu/registry/387/

The registry is open for all neuromuscular disorders patients from Egypt, Africa and the Arabic countries.

 


Mission:

As there is a growing interest from researchers towards muscular dystrophy, many therapies became FDA approved and others still under clinical trials.

Our mission is to build a database about patients with neuromuscular disorders to connect patients with researchers so to make sure all patients will be included in the international clinical trial programs for the recent neuromuscular therapies.